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The
Oviedo Convention of the Council of Europe on Human Rights and
Biomedicine (27) speaks about " equitable access to health
care ". The Declaration of Hawaii (28) is also concerned
with the common good and a just allocation of health resources.
The APA is also looking into questions of abuse by managed-care
organizations of psychiatry and into those touching on parity
(International Commission for Parity, American Psychiatric Association),
and has recently published a recommendation that the United
States Congress enact certain legislated standards to protect
the rights of patients against certain abusive managed-care
practices.
3.3.
Persons with Disabilities
When speaking of equity and while seeking to avoid discrimination,
differentiation must also be demanded, in the sense of seeking
to ensure the right to equal treatment of disadvantaged persons.
Differentiation, however, becomes discriminatory when its purpose
or effect is to deny or restrict the equal enjoyment of human
rights.
Apart from being a condition inherent in a person, disability
is, to a large degree, based on societal attitudes . There is
empirical evidence of discriminatory practices towards disabled
people in the areas of access to education; meaningful participation
in the labor force and in the statistics on physical and sexual
abuse. Promoting and protecting the rights and dignity of disabled
people require legal approaches, diminishing societal barriers,
and modifying negative attitudes towards disability.
The United Nations called attention in 1982 to the fact that
more than 500 million people in the world are disabled as a
consequence of mental, physical or sensory impairment. They
are entitled to the same rights as all other human beings and
to equal opportunities. Too often their lives are handicapped
by physical and social barriers in society which hamper their
full participation. Because of this, millions of children and
adults in all parts of the world often face a life that is segregated
and debased.
Disability, from a medical perspective, was seen as a "
deficit " inherent in the person with an impairment that
could be eventually cured following successful intervention.
This approach did not recognize the possibility of potential
adaptations of the patient and undervalued the importance of
physical environment and social attitude towards the experience
of disability. Disability was then redefined as a statistical
deviance from the norm, redefining social attitudes and situating
disabled people within the normal range of human experience,
when disabled people themselves began speaking about their issues
in terms of rights. Finally, disabled people began advocating
for their own human rights, identifying environmental and social
barriers as forms of discrimination requiring a response based
on social justice. The issue became one of social oppression.
Disabled people must be treated by society as " equal in
dignity and rights " (UDHR). Differences in mental capability
can be accommodated without discrimination. Promoting and protecting
the rights and dignity of disabled people will require a combination
of : legal approaches ; attention to the concrete realities
of disability ; removing societal barriers ; modifying the perception
of, and cultural attitudes towards, persons with disabilities.
References
1. The U.N. Principles for the Protection of Persons with Mental
Illness and the Improvement of Mental Health Care (1991).
2.
The Recommendation on the Situation of the Mentally Ill of the
Council of Europe (1977).
3.
General Assembly of the United Nations, Resolution 2856/XVI,
Declaration on the rights of mentally retarded persons (20th
December 1971).
4.
General Assembly of the United Nations, Resolution 3447/XXX,
Declaration on the rights of disabled persons (9th December
1975).
5.
General Assembly of the United Nations, Resolution 48/95, Standard
rules on the equalization of opportunities for persons with
disabilities (20th December 1993).
Committee on Economic, Social and Cultural Rights, General Comment
on People with Disabilities, UN Doc. E/C. 12/1993/WP.13 (25
November 1994)
6.
Degener, T., Koster-Dreese, Y. (eds) Human Rights and Disabled
Persons (Dordrecht : Martinus Nijhoff Publishers), 1995
7.
Hannum, H. : " The HUDHR in National and International
Law ", Health and Human Rights Vol 3, No. 2, 145-160
8.
The report on the protection of human personality and its physical
and intellectual integrity, in the light of advances in biology,
medicine and biochemistry (E/CN.4/1172 and Add.1-3 and Corr.1)
was prepared.
9. Hendriks, A., Degener, T., " The Evolution of a European
Perspective on Disability Discrimination ", European Journal
of Health Law 1 (4) (1994) :343-366
10
" Geneva Initiative on Psychiatry "
11. " Association pour les droits de l'homme en psychiatrie
"
12.
Bazelon Center for Mental Health Law : bazelon@tidalwave.net
13.
"The François-Xavier Bagnoud Center for Health and
Human Rights " at the Harvard School of Public Health
14.
Molnar, B.E. : " Juveniles and Psychiatric Institutionalization
: Toward better due process and treatment review in the United
States ", Health and Human Rights, vol. 2, n. 2, 98-117
(1997)
15.
WPA Interventions (known as the Daes Report) in the Working
Group, established by the Economic and Social Council on "
The question of persons detained on the grounds of mental health
or suffering from mental disorder " (1983)
16.
Compendium Statistics on Special Population Groups, Series Y,
No. 4. Author, Department of International Economic and Social
Affairs Statistical Office : New York, 1990, 342 pp.
17.
Jacobson, J.W.: Dual Diagnosis Services : history, progress
and perspectives, in Bouras, Ed.: "Psychiatric and Developmental
Disorders in Developmental Disabilities and Mental Retardation,
Cambridge University Press, 1999, pp329-359
18.
Sovner, R.: Limiting factors in the use of DSM III with mentally
retarded persons. Psychopharmacology Bulletin, 22, 1055-9
19.
Moss, S. Assessment: Conceptual issues. In Bouras, Ed. : "Psychiatric
and Developmental Disorders in Developmental Disabilities and
Mental Retardation, Cambridge University Press, 1999, pp 18-38
20.
Gostin, L.O., " The Americans with Disabilities Act and
the U.S. Health-Care System ", Health Affairs 11 (3) (1992)
: 248-257.
21. Jacobson, A. and Richardon, B : Assault experiences of 100
psychiatric inpatients : evidence for the need for routine enquiry.
American Journal of Psychiatry. 144 (1987) :908-913. Cited in
D. Sobsey and T. Doe (1991) ibid.
22.
Geiger, H.J. : " Inequity as Violence: Race, Health and
Human Rights in the United States ", Health and Human Rights,
vol. 2, no. 3, pp 7-13.
23.
Neufeldt, A. and R.Mathieson : Empirical Dimensions of Discrimination
against Disabled People, Human Rights and Health
24.
Alleyne, G.A.O. : " Health and Human Rights: the Equity
Issue " Health and Human Rights, vol. 2, no. 3, pp 65-71
25.
Hahn, H., " Towards a politics of disability : definitions,
disciplines and politics ", The Social Science Journal
22 (4) (1985) : 87-105.
26.
Finkelstein, V. : Attitudes and disabled people (New York :
World Rehabilitation Fund, 1980) 92 pp.
27. The Covenant of the Council of Europe on Human Rights and
Bio-medicine (Articles 25 and 27) (Oviedo, 1997)
28.
The World Psychiatric Association, Declaration of Hawaii (1983)
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